At the hospital
- Today was an OK day on paper, but a bad day if you have ovarian cancer. Rachel's labs looked OK after her dialysis yesterday, and she got dialysis again today. There was no bad news on the infection front, or her chest X-ray, or any other tests.
- The weaning from sedation/pain meds isn't working: her only two modes today were "unconscious" and "apparent agony". I don't use that word lightly -- when she was awake her face was beet-red and contorted, she squirmed in her bed, gripped her bedrails (or a visitor's hand) tightly, and bit down so hard on her ventilator tubing that the pressure alarm went off on the machine. The staff is no more immune to this than you or I would be; they put her back on the continuous sedative (Ativan), and upped her pain med (also switching back to Dilaudid from morphine). The physical benefits of coming off of sedation are heavily outweighed right now by the need for pain relief. She was resting when I left this evening.
At home
- The kids picked up pet supplies with Aunt Kathy today, including a new fish tank. They'll populate it this weekend once it's equilibrated -- Conor has an interest in some expensive fish, but he's going to learn about the "Abe Lincoln" limit.
- Emmet went with his friend Lanie and her family tonight to Cirque du Soleil. The rest of us are watching even more Olympics.
Pat
5 comments:
A friend forwarded this blog to me. I don't know Rachel very well but her smiling face and personality are always a joy to be around. I am sending peace, love and healing energy to you and your family. Thank you for writing the blog. May you be surrounded with love, light and strength. Diane Rakocy
Dear Pat,
Mike Biarneson informed some of us of the difficult time you are going through. I am so very sorry to hear of your wife, Rachel's condition. I will pray for her and hope somehow that she pulls through this. I pray that she will not be in a lot of pain and pray for your children.
Olga
Dear Pat,
Mike Biarneson informed some of us of the difficult time you are going through. I am so very sorry to hear of your wife, Rachel's condition. I will pray for her and hope somehow that she pulls through this. I pray that she will not be in a lot of pain and pray for your children.
Olga
The Ares family (NJ friends of Rob Harrigan) will continue praying for Rachel and your family. You are in our thoughts and prayers.
Roberta
Pat,
Such very sad news. My prayers are with you and your family.
Julie DL
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